Thank you for expressing an interest in this study. Researchers at the University of Birmingham are inviting parents/carers of people with tuberous sclerosis complex to take part in a questionnaire study looking at different behaviours in individuals with tuberous sclerosis complex and the changes in behaviour that take place as they grow older.
Instructions for completing the questionnaire:
1. Press 'next' to enter the password that you were given in your email. If you have not been given a password, please contact Stacey Bissell at S.L.Bissell@bham.ac.uk or call 0121 414 9775.
2. Once you have entered your password, you will then be shown information about the study. If you decide you would like to take part, you will be required to fill out an online consent form.
3. The questionnaires should be completed by the main caregiver. Please ensure you are completing the online survey in a well-lit environment that is free from trip hazards, and that you maintain a comfortable posture while attending to the screen. Please take breaks from the survey as needed (leaving the browser tab open to return at a later time).
4. Please do not press the back button on your browser while completing the survey, as your answers will not save properly.
5. In line with our COVID-19 protocol, please ensure that the electronic device you are using has not been in the possession of someone outside of your household/support bubble in the last 72 hours. Please also ensure that the room you are in has not been occupied by someone outside of your household/support bubble in the last 72 hours.
There are 249 questions in this survey.
